Editing Cancer registry (section)

{{Short description|Collection of data about cancer and tumor diseases}}
{{Globalize|article|USA|2name=the United States|date=September 2013}}

A '''cancer registry''' is a systematic collection of data about [[cancer]] and [[tumor]] diseases. The data are collected by [[National Cancer Registrars Association|Cancer Registrars]]. Cancer Registrars capture a complete summary of patient history, diagnosis, treatment, and status for every cancer patient in the United States, and other countries.<ref>{{cite journal|last1= Khatib|first1= O|last2= Aljurf|first2= M|title= Cancer Prevention and Control in the Eastern Mediterranean Region: The Need for a Public Health Approach|journal= Hematol Oncol Stem Cell Ther|volume= 1|issue= 1|date= Jan–Mar 2008|pages= 44–52|pmid= 20063528|doi=10.1016/s1658-3876(08)50060-4|doi-access= free}}</ref>

The [[Surveillance, Epidemiology, and End Results|Surveillance, Epidemiology and End Results]] (SEER) program of the [[National Cancer Institute]] (NCI) was established in 1973 as a result of the [[National Cancer Act of 1971]]. The National Program of Cancer Registries (NPCR) was established by Congress through the Cancer Registries Amendment Act in 1992, and administered by the [[Centers for Disease Control and Prevention]] (CDC).<ref>{{cite web|url= https://www.cdc.gov/cancer/npcr/about.htm|title= About the Program|publisher= Centers for Disease Control and Prevention|date= 2016-04-20|access-date= 2016-05-15}}</ref> NPCR and SEER together collect cancer data for the entire U.S. population. CDC and NCI, in collaboration with the [[North American Association of Central Cancer Registries]], have been publishing annual federal cancer statistics in the ''United States Cancer Statistics: Incidence and Mortality'' report. Information maintained in the cancer registry includes: demographic information, medical history, diagnostic findings, cancer therapy and follow up details.<ref name="NCRAUSAInfo">{{cite web|url= http://www.ncra-usa.org/i4a/pages/index.cfm?pageid=3301 |archive-url= https://web.archive.org/web/20111107205328/http://www.ncra-usa.org/i4a/pages/index.cfm?pageid=3301 |title= Cancer Registrar FAQ|publisher= National Cancer Registrars Association|archive-date= 2011-11-07|accessdate= 2012-04-16}}</ref> The data is used to evaluate patient outcome, quality of life, provide follow-up information, calculate survival rates, analyze referral pattern, allocate resources at regional or state level, report cancer incidence as required under state law, and evaluate efficacy of treatment modalities.<ref name="NCRAUSAInfo" />

There exist population-based cancer registries, [[hospital]] cancer registries (also called hospital-based cancer registries), and special purpose registries.