Editing Primary biliary cholangitis (section)

====PBC Foundation====
The PBC Foundation is a UK-based international charity offering support and information to people with PBC and their families and friends.<ref name="AMRC">{{cite web|last1=Association of Medical Research Charities|title=The PBC Foundation|url=http://www.amrc.org.uk/our-members/member-directory/the-pbc-foundation|access-date=12 July 2015|archive-url=https://web.archive.org/web/20160304225259/http://www.amrc.org.uk/our-members/member-directory/the-pbc-foundation|archive-date=4 March 2016|url-status=dead}}</ref>  It campaigns for increasing recognition of the disorder, improved diagnosis, and treatments, and estimates over 8,000 people are undiagnosed in the UK.<ref name=Scotsman2008/><ref>{{cite journal | vauthors = Thain C | journal = At Home Magazine | format = online | year = 2015 | title = Primary Biliary Cirrhosis: Getting a Diagnosis | url = http://www.athomemagazine.co.uk/primary-biliary-cirrhosis-getting-a-diagnosis/ | access-date = 28 July 2015 | archive-date = 13 July 2015 | archive-url = https://web.archive.org/web/20150713032239/http://www.athomemagazine.co.uk/primary-biliary-cirrhosis-getting-a-diagnosis/ | url-status = dead }}</ref>  The Foundation has supported research into PBC including the development of the PBC-40 [[quality of life]] measure published in 2004<ref name="pmid15961522">{{cite journal | vauthors = Jacoby A, Rannard A, Buck D, Bhala N, Newton JL, James OF, Jones DE | title =  Development, Validation, and Evaluation of the PBC-40, a Disease Specific Health-Related Quality of Life Measure for Primary Biliary Cirrhosis | journal = Gut | volume = 54 | issue = 11 | pages = 1622–1629 | date = November 2005 | pmid = 15961522 | pmc = 1774759 | doi = 10.1136/gut.2005.065862 }}</ref> and helped establish the PBC Genetics Study.<ref name = "Liu_2012"/><ref>{{cite journal | vauthors = Mells GF, Floyd JA, Morley KI, Cordell HJ, Franklin CS, Shin SY, Heneghan MA, Neuberger JM, Donaldson PT, Day DB, Ducker SJ, Muriithi AW, Wheater EF, Hammond CJ, Dawwas MF, Jones DE, Peltonen L, Alexander GJ, Sandford RN, Anderson CA | display-authors = 6 | title = Genome-Wide Association study Identifies 12 New Susceptibility Loci for Primary Biliary Cirrhosis | journal = Nature Genetics | volume = 43 | issue = 4 | pages = 329–332 | date = March 2011 | pmid = 21399635 | pmc = 3071550 | doi = 10.1038/ng.789 }}</ref> It was founded by Collette Thain in 1996, after she was diagnosed with the condition.<ref name=Scotsman2008>{{cite web | author = Staff | work = The Scotsman | date = 3 January 2008 | url =  http://www.scotsman.com/news/health/dealing-with-a-silent-killer-1-1239548 | title = Dealing with a silent killer }}</ref>  Thain was awarded an MBE [[Order of the British Empire]] in 2004 for her work with the Foundation.<ref>{{cite web | vauthors = Gordon B | work = The Scotsman | date = 31 December 2003 | url = http://www.scotsman.com/news/a-royal-seal-of-approval-1-898754 | title = A royal seal of approval }}</ref>  The PBC Foundation helped initiate the name change campaign in 2014.<ref name="PBCFname"/><ref name="pbcers.org"/><ref name="EASL Name Change Presentation">{{cite web|last1=PBC Foundation|title=EASL Name Change Presentation|url=http://www.pbcfoundation.org.uk/Home/BlogItem/12|access-date=8 July 2015|archive-url=https://web.archive.org/web/20150709010619/http://www.pbcfoundation.org.uk/Home/BlogItem/12|archive-date=9 July 2015|url-status=dead}}</ref>