Editing Genetic testing (section)

===Pediatric genetic testing===
The [[American Academy of Pediatrics]] (AAP) and the [[American College of Medical Genetics]] (ACMG) have provided new guidelines for the ethical issue of [[pediatrics|pediatric]] genetic testing and [[Screening (medicine)|screening]] of children in the United States.<ref name=Time2013>{{cite magazine|last1=Rochman|first1=Bonnie|title=New Guidelines for Genetic Testing in Children|url=https://healthland.time.com/2013/02/21/new-guidelines-for-genetic-testing-in-children/|magazine=Time|date=February 21, 2013}}</ref><ref name=2013Policy>{{cite journal | title = Ethical and policy issues in genetic testing and screening of children | journal = Pediatrics | volume = 131 | issue = 3 | pages = 620–622 | date = March 2013 | pmid = 23428972 | doi = 10.1542/peds.2012-3680 | s2cid = 42535260 | doi-access = free | quote = All policy statements from the American Academy of Pediatrics automatically expire 5 years after publication unless reaffirmed, revised, or retired at or before that time | vauthors = Fallat ME, Katz AL, Mercurio MR, Moon MR, Okun AL, Webb SA, Weise KL, Saul RA, Braddock SR, Chen E, Freedenberg DL, Jones MC, Perrin JM, Tarini BA, David KL, Bartoshesky LE, Anderson RR, Best RG, Hoffman JD, Ito M, Lemke AA, Murray ML, Sharp RR, Bhambhani V }}</ref>  Their guidelines state that performing pediatric genetic testing should be in the best interest of the child. AAP and ACMG recommend holding off on genetic testing for late-onset conditions until adulthood, unless diagnosing genetic disorders during childhood can reduce morbidity or mortality (e.g., to start early intervention). Testing asymptomatic children who are at risk of childhood onset conditions can also be warranted.
Both AAP and ACMG discourage the use of [[direct-to-consumer]] and home kit genetic tests because of concerns regarding the accuracy, interpretation and oversight of test content.
Guidelines also state that parents or guardians should be encouraged to inform their child of the results from the genetic test if the minor is of appropriate age. For ethical and legal reasons, health care providers should be cautious in providing minors with predictive genetic testing without the involvement of parents or guardians. Within the guidelines set by AAP and ACMG, health care providers have an obligation to inform parents or guardians on the implication of test results.
AAP and ACMG state that any type of predictive genetic testing should be offered with [[genetic counseling]] by [[clinical genetics]], [[genetic counselors]] or health care providers.<ref name=2013Policy/>