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Primary biliary cholangitis
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====PBCers Organization==== The PBCers Organization is a US-based nonprofit patient support group that was founded by Linie Moore in 1996; it advocates for greater awareness of the disease and new treatments.<ref>{{cite web| vauthors = Kim M |title=New hope for PBC liver disease|url=http://abc30.com/health/new-hope-for-pbc-liver-disease/479448/|website=ABC30 Action news|access-date=4 August 2015|date=18 January 2015}}</ref> It supported the name change initiative.<ref name="pbcers.org"/> <!-- repeat from above ===Name=== In 2014 the PBC Foundation, with the support of the PBCers Organization, the PBC Society (Canada)<ref name="pmid26196152">{{cite journal | vauthors = Cheung AC, Montano-Loza A, Swain M, Vincent C, Renner E, Sherman M, Janssen HL, Mason AL | display-authors = 6 | title = Time to make the change from 'primary biliary cirrhosis' to 'primary biliary cholangitis' | journal = Canadian Journal of Gastroenterology & Hepatology | volume = 29 | issue = 6 | pages = 293 | year = 2015 | pmid = 26196152 | pmc = 4578449 | doi = 10.1155/2015/764684 }}</ref> and other patient groups, advocated a change in name from "primary biliary cirrhosis" to "primary biliary cholangitis," noting that most PBC patients did not have [[cirrhosis]] and that "cirrhosis" often had negative connotations of [[alcoholism]].<ref name="PBCFname"/><ref name="pbcers.org"/><ref name="EASL Name Change Presentation"/> Patient and professional groups were canvassed.<ref name="pmid26374822"/> Support for the name change came from professional bodies including the [[American Association for the Study of Liver Diseases]]<ref name="AASLD-PBC">{{cite web|last1=AASLD|title=A Name Change for PBC: Cholangitis Replacing Cirrhosis|url=https://www.aasld.org/name-change-pbc-cholangitis-replacing-cirrhosis|access-date=6 July 2015}}</ref> and the [[European Association for the Study of the Liver]].<ref name="pmid26385765"/> Advocates for the name change published calls to adopt the new name in multiple hepatology journals in the fall of 2015.<ref name="pmid26374822">{{cite journal | vauthors = Beuers U, Gershwin ME, Gish RG, Invernizzi P, Jones DE, Lindor K, Ma X, Mackay IR, Parés A, Tanaka A, Vierling JM, Poupon R | display-authors = 6 | title = Changing nomenclature for PBC: from 'cirrhosis' to 'cholangitis' | journal = Gut | volume = 64 | issue = 11 | pages = 1671–1672 | date = November 2015 | pmid = 26374822 | doi = 10.1136/gutjnl-2015-310593 | doi-access = free }}</ref><ref name="pmid26385765">{{cite journal | vauthors = Beuers U, Gershwin ME, Gish RG, Invernizzi P, Jones DE, Lindor K, Ma X, Mackay IR, Parés A, Tanaka A, Vierling JM, Poupon R | display-authors = 6 | title = Changing nomenclature for PBC: From 'cirrhosis' to 'cholangitis' | journal = Journal of Hepatology | volume = 63 | issue = 5 | pages = 1285–1287 | date = November 2015 | pmid = 26385765 | doi = 10.1016/j.jhep.2015.06.031 | doi-access = free }}</ref><ref name="pmid26372460">{{cite journal | vauthors = Beuers U, Gershwin ME, Gish RG, Invernizzi P, Jones DE, Lindor K, Ma X, Mackay IR, Parés A, Tanaka A, Vierling JM, Poupon R | display-authors = 6 | title = Changing nomenclature for PBC: From 'cirrhosis' to 'cholangitis' | journal = Hepatology | volume = 62 | issue = 5 | pages = 1620–1622 | date = November 2015 | pmid = 26372460 | doi = 10.1002/hep.28140 | s2cid = 45700644 }}</ref><ref name="pmid26385706">{{cite journal | vauthors = Beuers U, Gershwin ME, Gish RG, Invernizzi P, Jones DE, Lindor K, Ma X, Mackay IR, Parés A, Tanaka A, Vierling JM, Poupon R | display-authors = 6 | title = Changing nomenclature for PBC: from 'cirrhosis' to 'cholangitis' | journal = Gastroenterology | volume = 149 | issue = 6 | pages = 1627–1629 | date = November 2015 | pmid = 26385706 | doi = 10.1053/j.gastro.2015.08.031 | doi-access = free }}</ref> -->
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