Editing Cleft lip and cleft palate (section)

===Outcomes assessment===
Measuring the outcomes of CLP treatment has been laden with difficulty due to the complexity and longitudinal nature of cleft care, which spans birth through young adulthood. Prior attempts to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards for outcomes assessment in cleft care.{{citation needed|date=May 2022}}

The International Consortium for Health Outcome Measurement (ICHOM) has proposed the Standard Set of Outcome Measures for Cleft Lip and Palate.<ref>{{Cite web | url=https://www.ichom.org/medical-conditions/cleft-lip-palate/ | title=ICHOM &#124; Cleft Lip & Palate Standard Set &#124; Measuring Outcomes}}</ref><ref name= AlloriICHOM2017 >{{cite journal | vauthors = Allori AC, Kelley T, Meara JG, Albert A, Bonanthaya K, Chapman K, Cunningham M, Daskalogiannakis J, de Gier H, Heggie AA, Hernandez C, Jackson O, Jones Y, Kangesu L, Koudstaal MJ, Kuchhal R, Lohmander A, Long RE, Magee L, Monson L, Rose E, Sitzman TJ, Taylor JA, Thorburn G, van Eeden S, Williams C, Wirthlin JO, Wong KW | title = A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care | journal = The Cleft Palate-Craniofacial Journal | volume = 54 | issue = 5 | pages = 540–554 | date = September 2017 | pmid = 27223626 | doi = 10.1597/15-292 | s2cid = 43371901 }}</ref> The ICHOM Standard Set includes measures for many of the important outcome domains in cleft care (hearing, breathing, eating/drinking, speech, oral health, appearance and psychosocial well-being). It includes clinician-reported, patient-reported, and family-reported outcome measures.