Editing Potter sequence (section)

==Prognosis==
The outcome of Potter's Sequence is poor. A series of 23 patients in 2007 recorded 7 deaths, 4 in the neonatal period. All 16 survivors have chronic kidney disease, with half developing end stage renal failure (median age 0.3 years, range 2 days to 8.3 years). Survivors had growth impairment (44%) and cognitive and motor development delay (25%)<ref>{{cite web |url=http://reference.medscape.com/medline/abstract/17065192 |title = Medscape: Medscape Access}}</ref>

The first child to survive bilateral renal agenesis (BRA), Abigail Rose Herrera Beutler, was born in July 2013 to US Congresswoman [[Jaime Herrera Beutler]].<ref>{{cite news|last=Camia|first=Catalina|title=Rep. Beutler shares miracle baby story with PEOPLE|url=http://onpolitics.usatoday.com/2014/05/15/jaime-herrera-beutler-baby-potter-syndrome/|publisher=USA Today|date=2014-05-15|access-date=2014-05-16}}</ref>
A few weeks before she was born, Dr. Jessica Bienstock, a professor of maternal–fetal medicine at Johns Hopkins Hospital,<ref>{{cite web | url=https://www.baltimoresun.com/2013/08/02/hopkins-doctors-rare-treatment-thought-to-contribute-to-a-first-in-congresswomans-delivery/ | title=Hopkins' doctor's rare treatment thought to contribute to a first in congresswoman's delivery | date=2 August 2013 | access-date=2016-07-21 | archive-date=2016-07-25 | archive-url=https://web.archive.org/web/20160725040617/http://articles.baltimoresun.com/2013-08-02/health/bs-hs-potter-syndrome-20130801_1_amniotic-fluid-bienstock-kidneys | url-status=live }}</ref> administered a series of saline solution injections into the mother's womb to help the baby's lungs to develop.  After Abigail was born, the procedure was considered a success. The infant did not need artificial respiration and could breathe on her own. Her parents kept her on at-home kidney dialysis until she was old enough for a kidney transplant.<ref>{{cite news|last=Henneberg|first=Molly|title=Congresswoman's 'miracle baby' may be first to survive Potter's Syndrome|url=https://www.foxnews.com/health/congresswomans-miracle-baby-may-be-first-to-survive-potters-syndrome/|access-date=September 10, 2013|newspaper=FoxNews.com|date=2013-09-06}}</ref> On February 8, 2016, at the age of two, Abigail received a kidney from her father at the [[Lucile Packard Children's Hospital]] Stanford in California.<ref>{{Cite web|url=https://www.opb.org/news/article/rep-herrera-beutlers-daughter-husband-recovering-after-kidney-transplant/|title=Rep. Herrera Beutler's Daughter, Husband Recovering After Kidney Transplant|website=opb}}</ref><ref>{{Cite web |url=http://www.kgw.com/news/health/rep-herrera-beutlers-husband-donates-kidney-to-daughter/39388618 |title=Rep. Herrera Beutler's husband donates kidney to daughter &#124; KGW.com |access-date=2016-07-21 |archive-date=2017-05-10 |archive-url=https://web.archive.org/web/20170510103843/http://www.kgw.com/news/health/rep-herrera-beutlers-husband-donates-kidney-to-daughter/39388618 |url-status=dead }}</ref><ref>{{cite web |url=http://www.columbian.com/news/2016/feb/10/herrera-beutlers-miracle-baby-gets-kidney/ |title = Herrera Beutler's 'miracle baby' gets kidney - The Columbian| date=30 September 2023 }}</ref>