Editing Cancer registry (section)

=== United States ===
==== SEER Registries ====
The [[Surveillance, Epidemiology, and End Results]] (SEER) Program of the [[National Cancer Institute]] collects and publish data on cancer incidence and survival throughout the United States. The information from population-based cancer registries covers approximately 28 percent of the US population. This coverage includes 26 percent of African Americans, 41 percent of Hispanics, 43 percent of American Indians and Alaska Natives, 54 percent of Asians, and 71 percent of Hawaiian/Pacific Islanders. The SEER program population-based cancer registries include Arizona Indians, Cherokee Nation, Connecticut, Detroit, Georgia Center for Cancer Statistics (Atlanta, Great Georgia, and Rural Georgia), Greater Bay Area Cancer Registry (San Francisco-Oakland and San Jose-Monterey), Greater California, Hawaii, Iowa, Kentucky, Los Angeles, Louisiana, New Jersey, New Mexico, Seattle-Puget Sound, and Utah. Selection of the geographic areas is based on the ability to operate and maintain a high quality population-based cancer reporting system.<ref>{{cite web|title= Overview of the SEER Program|url= http://seer.cancer.gov/about/overview.html|publisher= National Cancer Institute|access-date= 2012-05-03}}</ref>

==== National Program of Cancer Registries (NPCR) ====
The National Program of Cancer Registries is a U.S.-based program with state-based cancer registries that collect, analyze, and report cancer cases and deaths to a central cancer registry. NPCR was established in 1992 and administered by the CDC. NPCR supports central cancer registries in 46 states, the District of Columbia, Puerto Rico, the U.S. Pacific Islands, and the U.S. Virgin Islands. This data covers approximately 97% of the U.S. population. State cancer registries monitor cancer trends, determine cancer patterns, direct planning and evaluation of cancer control programs, help set priorities for allocating health resources, promote research, and provide information on cancer incidence. The data collected helps public health professionals understand and address the cancer burden. The twelfth volume of ''Cancer Incidence in Five Continents,'' published by the [[International Agency for Research on Cancer]], includes cancer incidence data from 32 NPCR-funded registries. NPCR's future direction is to expand the use of information technology designed to support, improve, and enhance the management and exchange of electronic data in cancer surveillance. ⁣ <ref>{{cite web|title= National Program of Cancer Registries| date=31 December 2024 |url= https://www.cdc.gov/national-program-cancer-registries/about/?CDC_AAref_Val=https://www.cdc.gov/cancer/npcr/about.htm}}</ref>

==== National Firefighter Registry ====
{{Main|National Firefighter Registry}}
Due to the lack of central and comprehensive sources of data, research on cancer rates amongst [[firefighter]]s has been challenging.<ref>{{Cite journal |last1=Daniels |first1=Robert D |last2=Kubale |first2=Travis L |last3=Yiin |first3=James H |last4=Dahm |first4=Matthew M |last5=Hales |first5=Thomas R |last6=Baris |first6=Dalsu |last7=Zahm |first7=Shelia H |last8=Beaumont |first8=James J |last9=Waters |first9=Kathleen M |last10=Pinkerton |first10=Lynne E |date=June 2014 |title=Mortality and cancer incidence in a pooled cohort of US firefighters from San Francisco, Chicago and Philadelphia (1950–2009) |journal=Occupational and Environmental Medicine |language=en |volume=71 |issue=6 |pages=388–397 |doi=10.1136/oemed-2013-101662 |issn=1351-0711 |pmc=4499779 |pmid=24142974}}</ref><ref>{{Cite journal |last1=Tsai |first1=Rebecca J. |last2=Luckhaupt |first2=Sara E. |last3=Schumacher |first3=Pam |last4=Cress |first4=Rosemary D. |last5=Deapen |first5=Dennis M. |last6=Calvert |first6=Geoffrey M. |date=May 6, 2015 |title=Risk of cancer among firefighters in California, 1988–2007 |url=http://dx.doi.org/10.1002/ajim.22466 |journal=American Journal of Industrial Medicine |volume=58 |issue=7 |pages=715–729 |doi=10.1002/ajim.22466 |issn=0271-3586 |pmc=4527530 |pmid=25943908}}</ref><ref>{{Cite journal |last1=Lee |first1=David J. |last2=Koru-Sengul |first2=Tulay |last3=Hernandez |first3=Monique N. |last4=Caban-Martinez |first4=Alberto J. |last5=McClure |first5=Laura A. |last6=Mackinnon |first6=Jill A. |last7=Kobetz |first7=Erin N. |date=April 2020 |title=Cancer risk among career male and female Florida firefighters: Evidence from the Florida Firefighter Cancer Registry (1981–2014) |url=https://pubmed.ncbi.nlm.nih.gov/31930542 |journal=American Journal of Industrial Medicine |volume=63 |issue=4 |pages=285–299 |doi=10.1002/ajim.23086 |issn=1097-0274 |pmid=31930542 |s2cid=210191181}}</ref><ref>{{Cite journal |last1=Ma |first1=Fangchao |last2=Fleming |first2=Lora E. |last3=Lee |first3=David J. |last4=Trapido |first4=Edward |last5=Gerace |first5=Terence A. |date=September 2006 |title=Cancer incidence in Florida professional firefighters, 1981 to 1999 |url=https://pubmed.ncbi.nlm.nih.gov/16966954 |journal=Journal of Occupational and Environmental Medicine |volume=48 |issue=9 |pages=883–888 |doi=10.1097/01.jom.0000235862.12518.04 |issn=1076-2752 |pmid=16966954 |s2cid=45179842}}</ref> On July 7, 2018, Congress passed the Firefighter Cancer Registry Act of 2018 requiring the [[Centers for Disease Control and Prevention]] to create the [[National Firefighter Registry for Cancer]] designed to collect data on cancer rates among U.S. firefighters.<ref name=":22">{{Cite web |title=Firefighter Cancer Registry Act of 2018 (2018 – H.R. 931) |url=https://www.govtrack.us/congress/bills/115/hr931 |access-date=May 9, 2022 |website=GovTrack.us |language=en}}</ref><ref>{{Cite web |date=2022-09-19 |title=National Firefighter Registry |url=https://www.cdc.gov/niosh/firefighters/registry.html |access-date=2022-11-08 |website=U.S. National Institute for Occupational Safety and Health |language=en-us}}</ref><ref>{{Cite web |title=The National Firefighter Registry: An update on the plan to track firefighter cancer |url=https://www.firerescue1.com/cancer/articles/the-national-firefighter-registry-an-update-on-the-plan-to-track-firefighter-cancer-NQ5oPnbOKPDtfWiO/ |url-status=live |archive-url=https://web.archive.org/web/20220407003328/https://www.firerescue1.com/cancer/articles/the-national-firefighter-registry-an-update-on-the-plan-to-track-firefighter-cancer-NQ5oPnbOKPDtfWiO/ |archive-date=April 7, 2022 |access-date=September 30, 2022 |website=FireRescue1 |date=17 March 2022 |language=en}}</ref>